Consider the following statements with respect to National Policy for Rare Diseases:
1. Under this a digital portal for crowd funding and voluntary donations for treatment has been launched.
2. It provides financial support up to ₹ 50 lakhs to any of the 3 categories of rare disease patients.
3. It has notified 63 rare diseases on the recommendation of the Central Technical Committee of Rare Diseases.

How many of the statements given above are correct?
(a) Only one
(b) Only two
(c) All three
(d) None

Question

Consider the following statements with respect to National Policy for Rare Diseases:
1. Under this a digital portal for crowd funding and voluntary donations for treatment has been launched.
2. It provides financial support up to ₹ 50 lakhs to any of the 3 categories of rare disease patients.
3. It has notified 63 rare diseases on the recommendation of the Central Technical Committee of Rare Diseases.

How many of the statements given above are correct?
(a) Only one
(b) Only two
(c) All three
(d) None

ONLiNE UPSC · Accepted Answer

Statement 1 is correct: Under National Policy for Rare Diseases a digital portal for crowd funding and voluntary donations for treatment of the patients suffering from rare diseases has been launched

Statement 2 is correct: National Policy for Rare Diseases provides financial support up to 50 lakhs to the patients suffering from any of the 3 categories of the rare diseases and for treatment in any of the centres of excellence as contained in NPRD-2021.

Statement 3 is correct: Based on the recommendations of the Central Technical Committee of Rare Diseases (CTCRD), MoHFW has notified 63 rare diseases.
Additional information: The rare diseases have been identified and categorised into 3 groups.
Group 1: Disorders amenable to one-time curative treatment.
Group 2: Diseases requiring long term/lifelong treatment with relatively lower cost of treatment.
Group 3: Diseases for which definitive treatment is available but challenges are to make optimal patient selection for benefit, very high cost and lifelong therapy.

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